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Old 05-14-2015, 08:03 AM
Ragtop262 Ragtop262 is offline
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Join Date: Mar 2015
Location: Midwest
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Ragtop262 Ragtop262 is offline
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Join Date: Mar 2015
Location: Midwest
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Quote:
Originally Posted by Healthgirl View Post
Is the BFS diagnosed by skin biopsy? It sounds pretty much like the same thing or maybe just one level below since it doesn't have the extreme shooting pain type of neuropathy.
It really sounds the same. Ive never heard of BFS.
This is interesting to me. I have always had hyperexitabliliy of my nervous system, but never this pain, spasms, twitching and autonomic dysfunction anything like this.
The term "benign" in BFS is much the same as the term "ideopathic" applied to neuropathy. So, BFS is a diagnosis of exclusion. As with neuropathy, you would typically see a neurologist and get MRI's NCV, EMG, blood tests, etc. - mostly the same tests you would get for neuropathy. If you are having ongoing muscle twitches without any evidence of a cause such as ALS, MS, etc. - they would diagnose you with BFS. They also have more severe cases that include muscle cramping (sometimes called "cramp fasciculation syndrome") and the most severe is neuromyotonia where your muscles essentially lock up because the motor neurons keep firing continuously. All of these fall under the umbrella of "peripheral nerve hyperexcitability syndrome". Kind of confusing since several different names are used.
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"Thanks for this!" says:
janieg (05-14-2015)