I was dumped by the medical system as having symptoms "all in my head." Now I can hardly move because of what is a systemic wasting illness. What hurts the most are the nerves and muscles through my upper back, neck and craniofacial. I don't think what I have is common, perhaps even rare. My medical record has both autoimmune thyroiditis and hints at Ehlers Danlos or Marfan syndrome or even scleroderma. I can't make sense out of my own medical records. It is very painful and debilitating and I definitely want to know what the prognosis is but wonder if a specialist will ever know. I had ataxia that came on suddenly and acute onset of muscle wasting. I think it had been going on for awhile but I just didn't understand what I saw about my own body.