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Old 05-19-2015, 07:13 PM
Mark in Idaho Mark in Idaho is offline
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Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
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I understand your frustration. I have some similar difficulties. It took me a few years before my wife finally understood enough to start to help. By then, I had missed my chance at a Work Comp claim.

The thing that changed her understanding was when she finally read my NeuroPsych Assessment report. I think she may have also read some of the TBI Survival Guide at www.tbiguide.com.

It is not possible to make others understand. It helps if we learn how to communicate our struggles. Rather than a blanket, "I have a brain injury." comment, we need to explain how the injury is effecting us. For me, one problem was I would get lost trying to fill out forms. Paper forms were the worst thus the WC claim failure. If the form was online or on the computer and I needed to access other information on the computer, I needed two separate screens. I could not switch between one Word doc and another Word doc beneath it. I needed them to both be open on separate displays.

Part of the issue was learning how to understand my own issues and accept them as real so that I did not try to push through and fail. Being willing to be humble with others and ask for help in ways that they accept is important. Rather than, I need help with this form, I would say something like "I need to finish filling out this form but every time I look at it, I fill in a few lines then I get lost. Can you help me by reading the form so I can tell you the information for the specific field on the form." This is a big problem I have.

I learned that if I had to fill out a form by myself, I would put a blank sheet of paper over the part I had already filled out and a second piece over the bottom part to be filled out so I only saw the line I was working on. This made up for the lack of filtering by my brain.

I don't want to sound like I am dumping on you but only you can administrate these issues. It is possible to learn how to do it. Many of us have been through this. Getting mad at others will not help you or them.

btw, I don't recall the specifics of your situation, your age, living situation ( independent or with others/parents, spouse etc.) job, etc. so I may be missing with some of my points. If I have, please correct me so I can be better help.

Have you had a comprehensive NeuroPsych Assessment ?

I understand how nobody read the forms about anger, impulsiveness and such. It is difficult to get others to read boiler plate form/information. If it was more specific to your diagnosed condition, others may be more willing to read them. Otherwise, it is like handing them a text book and saying, please read pages x y and z. Can your brain injury worker meet with your family ? That might help. It helped in my situation when my wife attended a brain injury support group with me. She had a chance to hear other family and caregivers talk about these same issues.

So, please do not get upset with them or yourself. The past is past. Try to move forward.

btw, Is there a government office, legislator or such who can appeal your loss of the grant. Maybe an Office of Disability Assistance of some kind. We have Disability Advocates here in Idaho that help with some of these issues.

My best to you.
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