Originally Posted by ellsac

Hello

I have idiopathic small fiber neuropathy. NVC and EMG back in January were completely clean.

It seems as though I am losing muscle mass, though...or maybe I am imagining it. It can be hard to tell the difference sometimes haha. My muscles wear themselves out much faster, and I feel like I have lost tone. I don't necessarily think I am less active...but perhaps I am.

I also get a good amount of twitching and some deeper muscle pain at times...at least it feels deeper. I am seeing my neuro again in a few weeks for a follow up. Does anyone get these issues with small fiber only? I am scared that my motor nerves are now being affected.

I do of course have other problems...autoimmune Addison's disease and hypothyroidism which are both well managed (as much as they can be anyway).

My diet is as far as I know very good. I eat tons of veggies, some fruit, seafood, whey protein, some whole grains.