Originally Posted by MSbelle

Kitty, I'm RRMS. But some neuros are prescribing it for progressive MS even though it's not marketed for that.

I've tolerated it extremely well. I had a bad three days post treatment but I'm convinced that was the steroid crash (5g of IVSM over 5 days, no taper, and it was my first time on steroids ever). And by rough, I mean I slept for three days/nights straight pretty much, and had no energy... felt like I had mono again.

Day four post I came around, and everyday since has been wonderful. I have energy and I am walking unassisted after 6 months with a walker. BUT these are not effects from the Lemtrada. It's from the IVSM. It takes around three months (give or take) to start seeing any improvement from the Lemtrada.

There's an AWESOME Facebook group for Lemtrada that I can't suggest strongly enough. If it weren't for some of the people there, I would have not even taken the steps to start. I am on many the FB groups for DMDs (Lemtrada, Tysabri, Gilenya, HSCT) and it became clear that my neuro had it right when he mentioned he wanted me on Lem.