Welcome Clare, have you had any MRIs done? I had trouble getting a diagnosis myself, getting MRIs done pointed me in the right direction.

I tested negative for everything, the MRIs told a different tale. I am more adversely affected by heat, but it seems like my body has trouble controlling it's temperature, at times I shiver when it's not really cold, but it feels cold to me.

Just curious, have you ever had Mononucleosis? I just found out one of my cousins was diagnosed with Lupus, and she had mono twice.