New Member
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Join Date: May 2015
Posts: 5
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New Member
Join Date: May 2015
Posts: 5
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Hello, I have been suffering from Post Trauma vision syndrome for 20+ years. Over these 20 years, I've been misdiagnosed and placed in the hands of dozens of opthomologists who just say use warm compresses. Honestly, this forum is the first time I've seen other people who experience something remotely close to what ails me. I get the same pain that you do when looking at tv, cell phone, etc. but also my eyelids swell up and break out in styes. I've gotten a stye every week or every other week for 20+ years. I've never had a doctor talk to me about prism glasses or anything like that. They just see that the eye itself looks healthy and a brain scan shows nothing wrong. These posts actually give me a little bit of hope that I might get my life back, but the next step is figuring out what doctor to go to. I refuse to go to anymore eye doctors in Las Vegas, where I live. One of them is even listed as a neuro-optometrist, and he flat out told me my symptoms are physically impossible. I struggle to know where to turn next. There are specific eye care centers around the US such as Jules Stein in California and the opthomology department of Mayo Clinic. I will have to save up some dough to get there, but I don't know any other way to move forward.
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