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Old 05-24-2015, 12:20 AM
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Aussie99 Aussie99 is offline
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Join Date: Aug 2006
Location: Australia
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Join Date: Aug 2006
Location: Australia
Posts: 933
15 yr Member
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Quote:
Originally Posted by canagirl View Post
I can't cope. I'm so weak. All I do is cry. I can't find any peace or rest because to stop moving means excruciating pain. The nortriptiline isn't working ( maybe a bit but nowhere near enough). I feel like I must have compressed nerves all over so I try stretches and massaging a bit but then I burn like crazy for days. I feel like I have to try and uncompress these nerves ( I have to do something that to try and heal) but it just causes pain later. Gabapentin is low dose right now. Just on it for a day so far. Dr lowered starting dose to 100:100:100 for 4 days then 100:100:300 for four days then up by 100 every few days after that. Told to stop nortriptiline because of my blurry vision ( which I had before the med but it's WAY worse now). Start weaning tonight. Just keep thinking I can't live much longer. Family days that's selfish of me to say and think. But I think everyone will be better off without me. I am traumatizing my son with all the crying. He doesn't get the attention and love he deserves because I am so sad and in so much pain. He would be so much better with another mom. Everybody could go back to living normal lives after they grieve for me. I know u guys understand and wouldn't say that I am selfish. I think my family is selfish for trying to make me stay here and endure this excruciating existence.
Canagirl!!! No!!! Don't think that way. Your thoughts create your reality. 11 years ago I was struck with terrible all over PN I too was in agony/misery. It abated after 3 years and I started to live normally again. I would have never believed anyone if they would have told me I was going to start travelling around the world and get married and start a business. I have done all of this with PN. The same PN that I thought would have certainly disabled me or killed me. I know you cannot see through the dark clouds now, but being on these boards for the last 11 years I have observed even some of the most treacherous cases of PN abate & improve. Many many people have eventually recovered enough to start leading a normal life. I too twitched and vibrated for almost 3 years straight. Then one day it went away!! Please don't give up. PN is not like other illnesses it can take a few years to get better. Your son and husband love you and need you and your son will only ever have 1 mother.
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