Hi caroline2,
In written form you seem to be dealing with a lot of emotional pain, for yourself and for your sister
Is there someone who could read to her? Someone that could read a letter you may want to write? If so try, for her and you.
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So you are saying you never used any of the MS drugs?
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That is correct. I was diagnosed in 1985 at the age of 24. The first MS drug became available to the general MS population in 1993, by lottery. I did have a lottery number. Through the years I have chosen not to use the Disease Modifying Therapies/Disease Modifying Drugs (DMTs/DMDs aka MS drugs).
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I remember seeing her map areas of her body and injecting, walking around with infusions and her talking about the expensive drugs....she did them all.
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Some with MS do well on the DMTs and some continue to progress. Your Sister obviously tried to slow or stop the progression
It sounds like she was following the recommendation of her Dr.