Let me clarify. When your CRP was 160 last week were your symptoms worse? When your CRP dropped to 17 on Monday, were your symptoms better? In other words, do YOU feel the changes in CRP/ESR?

I agree that your immune system is likely at the root of this and that is why the IVIG might help to modulate it. I understand the NHS makes it hard to get approved, but if you have a positive skin biopsy and at least a positive ANA long with your swings of inflammatory markers, it could EASILY be argued that this comes from an autoimmune basis even though you haven't identified which AI disease. This is what I think you should present to your neuro.

The pain from SFN can certainly affect the mouth, nose, tongue, etc.