Hi Mat52

Your neuropathy sounds like it may have developed as a result of one (or more) of the auto-immune conditions. The high ESR rate mightn't be a reflection of the SFN but more due to an AI - especially if you have something else undiagnosed going on. It'd make sense that if you have an AI condition flaring then the PN will be aggravated. ESR is a non specific test and really should be used in conjunction with other tests. But your rate is high enough that the doctors should be following it up.

http://labtestsonline.org/understand.../esr/tab/test/

From your description of your jaw symptoms I'd agree it sounds more like neuralgia than TMD - sad to say the Max Fac may not be of much help in that case but definitely worth asking as you never know what experience they have. The neuro will probably say TN and include it with the SFN.

Your neurologist may not know much about endocrinology (and vice versa in my experience) so asking them about APS will probably draw a blank look. Maybe discuss it with your GP (again probably a blank look!) but I would request an urgent endocrinology appt. I think I remember you saying once before that you're not under an Endo for your Hashimoto's - just the GP. There's some tests your GP could order beforehand. Fasting cortisol (8am) to rule out Addison's. I'm not sure what tests for the other conditions but ask your GP.

If you feel both your Hashimoto's and RA are being reasonably well managed there's a chance something else is going on. Keep searching for answers. I've known the fatigue and brain fog only too well - happy to help research for you if you don't have energy. Take care.