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Magnate
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Join Date: Aug 2006
Posts: 2,871
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Magnate
Join Date: Aug 2006
Posts: 2,871
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Babies
Welcome,
I am so sorry that you are suffering from this. So many years ago our road down TOS began. After two to three years finally we found doctors that that are some of the top TOS experts.
That was 14 years ago. Ifound the forum over 10 years ago. That was when we started as Brain Talk 1, but a forum problem last year lost so many valuable archives there I would have loced to share. We are trying to rebuild data bases here though.
I had a few forum friends that had children. my older son has TOS among other injuries and is a stay at home Dad with my Grandson now 2. I did notice the flare up when Connor was smaller and carried a lot, When I helped them I kept everything on the floor. I had a diper center lots of pillow support and boopies to help support, I use even now an unbrolla stroller to wheel him everywhere,
He is now 33 pounds. It does get easier when they can walk and amuse their self. Just the running to keep up with him.
At night when baby is asleep..if they sleep. Take advantage to hot shower, soak, rub on biofreeze, use ice packs or frozen pea bags, At times I have heat on the back and ice on the area it feel like a knife is in my upper back and neck.
There is tons of love, understandoing and support here. I will try and search for some links we had with caring for babies and tos. SOmetimes they were copied and used other places and saved.
Welcome to the TOS family.
Dianne
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Pocono area, PA
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