I will update the sticky to help others when I feel more confident my research is valid.

On here and in your own sticky everyone is promoting the Tarlov Cyst foundation aka Dr. Feigenbaum a non profit group designed to help people find Dr. Feigenbaum as he is the only Dr. in the US listed as active on their site.

His receptionist wouldn't quote me a price but only said it was $17,000 in hospital fees should he operate and that they only take major private insurance. Going as far as to recommend I just buy private insurance or not proceed when I asked. He also operates oversea in Cyprus probably at a discounted rate. He has a 5 month "minimum" I was told wait for a free phone consult or a one month wait if I come to Texas for an office visit. It just sound so sketchy to me.

Then I find this other list and the first one I call in my area not even a far drive from me and he'll take my Medicaid. Yet everyone on here is only talking about Dr. Feigenbaum. I can't find anything anywhere recommending anyone else. It's very confusing. The whole nobody believes in this only this one guy he can save you attitude. I need to feel informed before I start putting in referrals and asking my insurance to approve authorizations out the state. I need a little confidence in these Dr's.

Spacifically Hsiang, John K., M.D., PhD. (Neurosurgeon) in Seattle. He has the best reviews and is the one who's receptionist I've been in contact with.