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Originally Posted by swimtime
The last few days have been much worse pain for our son. I thought it was due to changes in weather (dropping temps, thunderstorms, and heavy rains). I thought it would improve today since the weather's much better, but he's pretty much back to his pain level before starting the Lyrica.  Can Lyrica just stopped working for some people? I don't know if the CRPS is getting worse, or if it's a flare/spread (he had an intense, stabbing, shooting pain in his left heel for several minutes last week, and he hasn't been the same since.)
I'm taking him back to ortho tomorrow to discuss removing hardware. He has a history of autoimmune issues and it's possible he may have an allergy to the metal. (There's a long plate and lots of screws.) But I'm scared for him to have surgery again with all it's risks for CRPS.
I'm all cried out for now, but it's been an awful few days. This thing is such a monster. He's losing the progress he's worked so hard to gain b/c he can't tolerate as much weight bearing anymore. Sorry to be so negative, I'm not sure what to do next for him.
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I'm still learning about this but I have more pain when it gets hot and it hurts further up my arm. If I get a sunburn it's horrid. And ac in the car is not my friend either. But this is just my experience. These guys have great info for you! Sending hugs! I can't imagine if one of my kids had this