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Old 06-03-2015, 02:13 AM
juliejayne juliejayne is offline
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Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
10 yr Member
juliejayne juliejayne is offline
Member
 
Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
10 yr Member
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Quote:
Originally Posted by Ravenclaw View Post
Hi JulieJayne, how did your appointment go?
Disasterous!

He suggested that 800 iu Vit D would put that right He suggested that Vit D deficiency was the cause of ALL my problems. I pointed out the Diplopia. Oh, that must be a seperate issue... see an eye doctor!

My partner asked about seronegative MG? He said that was only a possible if there was a clinical diagnosis. And for him that meant Ptosis and Binocular DV.

So weak leg muscles...can't be MG. Lack of facial expression... can't be MG

We asked how it was possible that Mestinon reduced the symptoms so dramatically. "Don't know, can't explain that. But it is not Myasthenia."


On the positive side? He said keep taking the Mestinon if it helps, and yes increase it as much as you like it can't do any harm .
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