Originally Posted by NanaJ10

Ty all for your replies. I will try to respond about what each have suggested. I have never heard of most of these things. In 2001/2002, I was just sent from the surgeon to pain management, and there I have been left, my Dr wrote 3 mo prescriptions, but each prescription is 1 month supply, so for each pain med I get 3 prescriptions. I am taking them so sparingly, I am pretty much home and bed bound because i am so scared of having no medicine, honestly, I can't imagine. . I did not even know about these other things. I live in southern ohio. 1 county away is listed as the drug capitol and it is in documenatries on tv etc. The pain clinics...illegal ;;;started in Scioto county according to the news. But that is not the kind I have gone to, mine has been legitimate, however because of these illegal clinics and the drugs so bad many drs won't write anything. I have been reducing my meds myself. I can't tell if the flares are because meds are reduced, or just normal flares. Cleveland clinic I think, is peobably around 300 miles from me? I am at the southern part. Anyway driving is a HUGE issue for me and I have to get someone to take me and I am positive I won't get anyone to take me there. The closest teaching college is Ohio State Univ., again 2 hr drive. I have made a appt. with my family Dr. I had previously ask him about writing my prescriptions so I didnt have to go to pain management and he wouldn't. However I made this appt. to discuss with him if he knows any specialists within a hr drive or so, anyone who treats and understands RSD . The only specialist I ever saw was the 1 workers comp sent me to several times for evaluations and he doesnt have a reg office, and sadly is not a option.I have never heard of ketamine and going to look that up, nor about the saline. In 2002 I had nerve blocks, I really can't remember if they worked, if they did it couldn't have been for long. The stimulator, that is hard to explain. I was getting ther temporary, and he had a hard time getting it,he told me finally when it was in the area it would have to be permanaent...it was out 1 week later, it made it soooo much worse!!! The last dr appt the nurse said it couldn't have been perm because temp and perm are 2 diff things, she said I didnt have it at all...I sure have a scar on my back for having nothing !!! They have my chart...geesh, look it up !!! But I guess they didn't really care anyway. Would have been nice if they had said, we can't see u anymore but here is a RSD specialist we will refer you to...As for the stim. I can only go by what the Dr told me when he did it, and he was the original pain management dr. I was so unaware of all of this stuff. All I heard back then was there was really nothing they could do but trial and error on meds. Originally it was a antideprtesant and seizure ,and and narcotics...only change all these yrs later is no antidepressant and lower doses of pain meds. I feel so cheated ...living in a very rural area, being poor, it seems I have just kind of been left hanging with no one saying...this is available etc. I am hoping to get a good referral to some type of Dr. from my Dr. In the meantime I am worried, I can't help but be. When it gets about7/ 8 I have been breaking over to take pain med, then usually 6 hrs later because I let it go so far I take a 2nd. I also take ibuprofen, tylenol, benadryl occasionally to sleep, I have tried vicks, and several other creams on my leg, but I can't bear rubbing anything on it. I have tried desentzation...again same thing but believe me I have really tried that many times and have sent myself to 7/8 that is so difficult to calm. I do breathing tech, I try to redirect my attention, I taught myself to crochet etc., but u all know nothing can really ever get rid of it. it makes me so scared thinking how will I cope, I guess because the only help I have had is the pain meds and I just think back to when I 1st got it, and until I finally got medicine... If something, whatever it may be , doesn't help and I get as I was before..I don't think I can cope or will have the desire too. ..... Praying my Dr can send me to someone who knows about RSD..... Ty so much, and prayers you will be pain free, and they will find a treatment for us all.