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Originally Posted by Ravenclaw
Sorry it went so bad 
Was this a neurologist? Is he familiar with MG? |
Was this a neurologist? Well he claims to be.
In fact he is
THE MG specialist of the Netherlands! He is in charge of major European wide MG projects! He leads the MG unit at a leading Teaching hospital.
Heaven help us all if this is the level of expertise!
I have already seen a Neuro-ophthalmologist, and whilst I might go back and see them again, it seems pretty much pointless, as they will not recognise Bilateral Monocular Diplopia, let alone a variable version thereof. Of course if they won't consider it possible, they will NEVER find it because they just shut their eyes.
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One thing I do believe in though, is that if a patient has problems that have a significant effect on daily life, it's up to the docs to find out what the cause is.
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Yep, I used to believe that too. But it appears not to be true. Instead if the docs can't fit you into a convenient box on the computer, they have invented a new one... it is in your head!!!!
Unless I can think of some other way to get them to pay attention, it seems that I simply have to wait for several years until I have Ptosis or Myasthenic Crisis. Otherwise I am at a dead end...
