Legendary
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Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,427
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Legendary
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,427
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Claired, You may likely have an upper cervical / brain stem issue. POTS can be an autonomic nervous system dysfunction. That is often a brain stem problem. No amount of vestibular rehab will likely help if your autonomic system needs healing. There are brain stem mini-strokes that can cause these issue.
A Physiatrist (Physical Medicine and Rehabilitation) often associated with a Neuro Rehab hospital may be able to help. As Jo*Mar said, an Upper Cervical Chiro may be helpful, too. The Vitamins sticky at the top has links to various Upper Cervical Chiro organizations for a referral to your area.
Have you had an MRI or MRI/MRA or MRI with contrast to see if you have proper blood flow to your brain stem ?
The myriad of ways POTS can manifest and be caused makes your case difficult. It appears you say that the POTS preceded your concussions. Is that correct ?
btw, What area are you in ? Maybe we can help you find a health care provider than can help.
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