Thanks so much for your input. And yup, my skin biopsy is positive. I didn't get the results back until January of this year but my symptoms have been going on for about 4 years (strange pain in my feet and feeling like I climbed Mount Washington after very little activity). I was able to just put it off and out of my mind until May of last year. First my upper back and neck seized up. It felt as though I was wearing something on my skin from my mid chest up to just under my earlobes. I new something wasn't right, but because it wasn't that painful I put it off.

Then I started having stomach issues along with a constant horrid taste in my mouth. After about of month of that my husband and I decided to spend a night in NYC. After having dinner we rented some of those citibikes and rode around Greenwich village. It wasn't strenuous because it was all down hill, but it was bumpy and after about 5 minutes I started having electrical pain shooting from my hands up my arms. Being the idiot hero that I can be, I didn't say anything and continued on hoping we'd pass a place to park the bikes. After another 5 minutes I finally told my husband and we searched for the nearest one.

I got off that bike with only one thing in mind, "What the hell is wrong with me?". Then the pain in my feet started to intensify and then I started feeling pain everywhere. Finally, my shrink of 8 years told me to go see this awesome doc in NYC (because my doc in NJ just kept scratching her head and telling me to exercise and every time I did I'd be bedridden for days). I saw Dr. N last October and he figured it was sfn but couldn't be sure until the skin biopsy.

Since the results came back I've tried Neurontin, Cymbalta and Lyrica. The Neurontin did nothing, the Cymbalta took away my ability to orgasm (and at 49 I don't need any help in that dept, lol) and though the Lyrica kind of works, I'm loopy and can't do anything when I'm taking it.

My pain is progressing every day. I can barely walk now and I can't use crutches because of the pain in my fingers and hands. It is only a matter of time that I finally deal and get a wheelchair, but I'm just not there yet, kwim? And after years of this my mind is finally going to those drugs I don't want to touch because I'm desperate for relief. I even tried sleeping with a bar of soap above my sheets but below my blanket because someone said it would take my pain away. It didn't.

I guess I should have included all these details in my first post but yesterday it was very difficult for me to type, not to mention think because of the Lyrica. I'm seeing my pain doc next Thursday and I'm bringing my husband with me for support. Hopefully I'll leave that appointment with hope instead of feeling like I'm being scrutinized. Let me say, I completely and totally understand why any doc would scrutinize me, especially a pain doc, but like I said before, I'm getting desperate for some relief. I'd really like to have a day where I wake up and just get out of bed and go about my day, kwim?

Thanks again for your response and support.

Here's what I take on a daily basis:

137 mcgs Synthroid
75mgs of Lyrica twice a day
30 mgs Cymbalta (slowly weaning off because it didn't help)
.25 mgs of Clonipin
Lidocaine patches, cream and Ketamine cream as needed