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Member
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Join Date: Nov 2007
Location: Connecticut USA
Posts: 549
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Member
Join Date: Nov 2007
Location: Connecticut USA
Posts: 549
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Hi Akrisia,
Sadly, no matter how much our family and friends love us, if they have never experienced the same thing, they just don't understand. Honestly, I didn't understand either before I had these health issues.
I don't have PCS but had a brain infection(Lyme Disease) that caused the same things, easy startle response to the seemingly mildest stimuli...often times, if my husband walks into the room with socks on and I don't hear him and then he is right behind me, I jump and yell.
I am most comfortable at home, usually at night when all is quiet with my cat curled up on my lap. I am very light sensitive and make people nuts as I turn off lights. Florescent lights at stores are the worst. We only have softly lit table lamps in our home, even in the kitchen...I cannot tolerate overhead lights or those DAMN curly lightbulbs. While I was away once, my husband had changed ALL the lightbulbs in our home to those new, squiggly ones....within 30 minutes of being home and reading by one, I got a seizure(I just get mild ones called partial complex.) My poor husband was just trying to do the right thing.
I also overload easily on too much stimuli like the movement of people in a mall, along with all the sounds, smells and lights. I therefore do most of my shopping online.
I am so sorry for what you have dealt with, what a doubly horrifying experience with an attacking dog and simultaneous fall/trauma.
Are you able to go to work/school?
Do you have much pain/headaches?
Is it improving?
There are many great forums here for concussions and PTSD and other ones like emotional and spiritual support. Alot of nice people here and truly, the greatest, most helpful moderators of any forum I have ever been part of. They don't get enough credit for all they do but, I appreciate and admire them all.
I wish you the best and hope you find the info and support you need here.
Like I said, I don't have PCS but brain injury and it gets better....be hopeful.
Find things that give you the most peace...soft music, guided imagery for relaxation
(there are TONS on YouTube), places in nature like a trail leading to a pond or babbling brook in a quiet park.
All my best,
Diandra
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