Haven't had much time to post lately. I was just kind of assessing where I'm at, and thought I might as well post it to see if anyone has comments.

I've been taking most of the recommended supplements and trying to improve my diet for at least a couple months now. Things aren't really getting any better - but they aren't really getting significantly worse either. I guess that's a good thing, since my condition was getting worse fairly quickly before I started the supplements. I still have significant pain in my feet, which gets worse the longer I'm on them. I've also developed mild burning and stabbing sensations that come and go in various parts of the body. These are not real bad - generally at the level of an annoyance, probably only a 1 or 1.5 on the pain scale.

As I've posted before, the Neuromuscular specialist said he couldn't find evidence of neuropathy, and suggested my varicose vein condition could be causing my foot pain. Just recently, I saw the vascular surgeon who indicated she hasn't seen anyone with burning feet improve after vein surgery - but she did find that the veins were in pretty bad shape and really do need surgery. (The laser ablation that was done several years ago has partially opened back up, and new veins formed, to "bypass" the ablation. The other leg has become a mess now too.) Trying to get insurance approval now, and will probably have the vein surgery in the fall (that's how far out they are scheduling.)

I also sent my DNA sample to 23andme, and currently waiting for the results. My sister tested heterozygous on a number of methylation genes - so there's a good chance I could have problems there as well.

Next week I have a follow up appointment with my general neuro. I think I'll at least start setting the stage for skin biopsy testing.

Sure would be nice if it didn't take months to schedule every appointment or test. Going on a year with this, and still don't even have a Doctor who will agree that I have symptoms of neuropathy - let alone a diagnosis. (Not that I "want" that diagnosis, but its frustrating when they don't seem to believe what you tell them.)