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Old 06-09-2015, 04:05 PM
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Grand Magnate
 
Join Date: Jan 2008
Location: Illinois
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15 yr Member
barb02 barb02 is offline
Grand Magnate
barb02's Avatar
 
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
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Kelly, I just saw this post so it is to late to give you any advice. I have only had IVSM once and it was for five days. I could only sleep for four hour for several weeks after getting the infusions. I did not really get any quick relief and my neurologist suggested that was because I did not get them more quickly after having my first major flare.

I actually lost my appetite and lost almost 50 pounds in the weeks following my infusion. That was the only benefit One thing that I realized in retrospect is that steroids increase my heart rate by quite a bit. This has happened when I have been on oral steroids and have had steroid injections too. I always have weird reactions to meds.

Hope you get some more relief.
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"Thanks for this!" says:
Kitty (06-10-2015)