Hi Krjb,
Welcome to the NeuroTalk Support Groups.

I had a quick search to see if there were many other members who had posted in the past about Klippel Feil Syndrome. There were only a few posts from a while ago.

If you want you can try the Forum Search Feature yourself.
http://neurotalk.psychcentral.com/search.php

I also wonder if posting on the Spinal Disorders & Back Pain Forum would be helpful as well as here.

I'm sorry your daughter is dealing with all these new symptoms and I truly hope that you are able to find some answers soon.

- The information about CMT that you responded to in your last post is actually in Kitt's signature file and pertains to her own condition. It wasn't posted directly to your questions about your daughter. -

take care.