ah heck CG I am sorry to hear that. I know you have been looking for answers for so long and yet it doesn't feel like the hoped for relief when finally getting them. I can't answer your question since I belong to the CRPS club but I wanted to reach out with a Kleenex and a hug. I hope this at least gives some direction to your treatment and allows you to move forward to the dealing with it phase and out of the "what the heck is it" phase.

Sending extra Healing Love, Littlepaw