Thread: toe curling
View Single Post
Old 06-19-2007, 03:32 PM
lou_lou's Avatar
lou_lou lou_lou is offline
In Remembrance
 
Join Date: Sep 2006
Location: about 45 minutes to anywhere!
Posts: 3,086
15 yr Member
lou_lou lou_lou is offline
In Remembrance
lou_lou's Avatar
 
Join Date: Sep 2006
Location: about 45 minutes to anywhere!
Posts: 3,086
15 yr Member
Heart hello dear mama terri -

Quote:
Originally Posted by proudest_mama View Post
Hey everyone

I hope I'm back. My computer date and clock were off, so whenever I posted something it went to the bottom of the pile. Frustrating to say the least!

I've been on Mirapex and Artane for over three years now. Artane has served its purpose, but admittedly, it messes with my eye sight and my confusion. I was also taking a pretty high dose (12 mg. a day).

Since then, the neuro prescribed Azilect. I was able to cut down the Artane to half, and perhaps even less than that.

But now I have a different issue which I don't know if it's is due to the medication or the disease.

On my right foot, my big toe curls and takes the next toe with. Because of this, my gait is throwing me off and I'm in serious pain from my buttocks to my toes. I need stock in Icy Hot packs!

I did go to Physical Therapy, but they honestly were stumped, never having had a PD patient before. It doesn't help that on the day that I had the appt., I had no pain! They were truly super, however, and gave me some exercises that I should do ... could do ... need to do ... but am too lazy to do! At the end of the appt., I agreed to call when I am experiencing pain so that they can isolate it.

In the meantime, the best thing (other than Icy Hot packs) that helps is wearing some type of sandal that doesn't allow the toes much room to curl. I look pretty pathetic weeding the garden in heels. LOL Initially, the first time that I wore tennis shoes helped, but there's simply too much room for the toe to curl.

Have any of you experienced this? The neuro (intern) told me that it would take a pretty big dose of Sinemet to combat that. I'm not sure why, but I have another appt. with the neuro on Thursday so I'll ask. I was also told about possibly having botox injections.

Any help, suggestions, or words of advice (other than exercise ... LOL) would be appreciated.

Here's hoping I'm b-a-a-a-c-k for good!

Terri
dear terri?
you have a bothersome thing called dystonia -ouch -ouch!!
maybe we breathe too shallow? or after the pain is soooooooooooooooooo
intense, we aren't breathing at all -
first try this breathe and try to think on peaceful things -I will crawl to the table and reach for my bottle of calcium / magnesium and vitamin D it comes all together in one capsule complex the brand I take is called Natures Way-
then you might wish to lie on the floor or bed face down or on your left side,
after you get yourself to deep breathe- Paula suggested this to me in a post, a while ago -she was rightooo!!

I feel stress brings on many things
possibly you may have eaten and are now in need of more sinemet...
I pray... and try to get peaceful, I might even have a small glass of merlot.
or if not merlot -whatever wine I might have opened in the fridge...
just remember if you take any drug that calms you down -the small glass of wine will make you feel twice as tired...

peace -to you and your body!
my dystonia is in my toes and lower back if really stressed out -
when my spinal cord feels like my body is trying to be ripped in half,
and then the neck and shoulders...
__________________
with much love,
lou_lou


.


.
by
.
, on Flickr
pd documentary - part 2 and 3

.


.


Resolve to be tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant with the weak and the wrong. Sometime in your life you will have been all of these.
lou_lou is offline   Reply With QuoteReply With Quote