Member
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Join Date: May 2013
Posts: 135
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Member
Join Date: May 2013
Posts: 135
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I wanted to chime in with support, but also the unsettling news that having positive tests don't always get you much with neuropathy. I have documented length-dependent neuropathy, SFN neuropathy, sensory & motor nerve damage, and some autonomic nerve symptoms. All lab tests, MRI`s, spinal tap are inconclusive. I have strong autoimmune family history but nothing concrete is showing up in bloodwork. I have yet to do a muscle or nerve biopsy, that may be next. I have spent a fortune in time, money and emotional stress and still have no cause to treat. I've had to take time-outs from what feels like a wild goosechase to save my sanity.
I am offered gabapentin or lyrica for nerve pain. Like many, I am addressing diet & supplements. I know how important it is to find the cause and hopefully find a treatment to fix it. Over 50% of us don't.
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Idiopathic Sensorimotor Polyneuropathy
Atypical Migraine
Chiari 1 malformation 7 mm
PLIF L5-S1 Sept. 2013
Lumbar MRI March 2013: degenerative changes from L3 to S1. L3 and L4 have tiny annular tears with disc bulge. L5-S1 bilateral pars defects anterolisthesis (spondylosis/spondylithesis?) I have an annular tear here too, along with a conjoined left L5-S1 nerve root. Mild effacement of the thecal sac at the origins of the bilateral S1 nerve roots, left greater than right. Mild bilateral Neural foraminal stenosis.
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