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Old 06-20-2015, 01:15 PM
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Russell Russell is offline
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Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Russell Russell is offline
Member
Russell's Avatar
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
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Quote:
Originally Posted by BioBased View Post
Littlepaw,

Reading that you now walk a mile every day after so many surgeries gives me hope.

I am just so tired and warn out. It is difficult to explain to people that stepping on a tiny crumb not only feels like a huge nail, but it can throw my balance off to the point that I could topple. The name change from RSD to CRPS hasn't helped either. Everyone thinks a doctor must have given me some magic pain pill that will solve this, if only!

I want my husband to film me taking a shower ( in a bathing suit of course ) or transitioning from the stairs to the landing and then dragging myself into a room to use furniture to maneuver myself into a standing position. I could post it FB, but while it old be a good visual, it would never show what it takes out of me. I am tired of being tired.
Hey Bio,
I want to let you know you're not alone with that. My wife has a pic of me sitting outside on a day of 91 deg wrapped in a winter coat shivering from being so cold. I even find comfort sitting for hours in my neighbors sweat lodge that he built.
This year my battle seems to be heat flashes were my body will just heat up inside and my physical control gets really bad. Although I feel really hot and sweating like a pig my original CRPS area is cold to the touch and I get so tired.
This monster sucks!!!
Be well..
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Hope for better days.....
Russ
okska'sssini ómahkapi'si
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"Thanks for this!" says:
Littlepaw (06-20-2015)