Heya,

I can understand your frustration and your fear!! I hate it when the RSD does this sort of thing. I have been lucky that I am under a really good neurologist and I have botox and strong muscle relaxants (diazipam, benzhexol and botox). My RSD led to me developing dystonia where my joints lock and twist and I lose the voluntary use of my limbs. Does hot water/ wax help with movement/ stretches? Have you tried mirror therapy - it is supposed to be very useful for RSD/ dystonia. It is a new therapy which is just starting in the UK. It sounds like you might be able to benefit from it? (and it's something you can do on your own without a physio). I also have splints I wear/ bandages that go in my hand to reduce the contractures. Oh, also, I have been told that RSD affects your ability to pre know a movement - so you will apparently move better if you think through the movement you want to do *apparently this is in line with the mirror thing*.

Good luck and I hope things get sorted for you. Are you glad you don't have to go to Dr Sherry's clinic?

Love

Frogga xxxxxx