((((((Katrina)))))),

Welcome to NeuroTalk

Questions: did the doctor say "light chain neuropathy"?? did he say "MGUS" or "monoclonal gammopathy of unknown significance"??

If he did, that's what I've got. It doesn't go away. I've had it (that I know about) since 1990. It doesn't go away. I've stabilized.

If I had the past 15-17 years to do over again, I would demand that they do plasmapharesis to clean the protein out of the blood to stop a lot of the damage.

I truly believe that all the research that's being done now will be able to, if not cure, neuropathy -- at least heal or repair it.

Now, the underlying causes for the neuropathy, those are all different. They're being worked on.

You need to keep your body healthy and READY for a cure. Eat right. Sleep well. Balance your life. Try to keep the chemical load on your body down (not easy in this day and age ).

That's all any of us can do is BELIEVE that there will come a way to repair/heal this. AND, like I said, if you do have light chain disease (like me), I would demand that they do plasmapharesis to get the extra protein out of your blood which will allay a lot of the damage. Light chain or kappa chain diseases are multiple myeloma, amyloidosis, and, what I have, monoclonal gammopathy of unknown significance (MGUS) which may or may not roll over to multiple myeloma if you live long enough.

Stay strong. And stay healthy. BIG HUGS.

Barb