Hi Chris,
It IS scarey going through this. There can be so many weird things that come up with this diagnosis and the way it impacts different systems. It can be difficult knowing what is what sometimes. Everyone struggles differently and everyone's presentation is unique. I think your best chance of getting a broad range of information in response to questions or comments is to put it right out here on the forum. So long as it's appropriate

You have the best chance of getting what you need quickly and getting input from different people. For example, some people have color change, mine can be pretty dramatic, Others don't have it at all. Cast a wide net, maybe someone who has issues similar to yours will come up to PM with. In the meantime you get some support.
So many of us have days driven by treatments, appointments or general poopiness it might be hard for some to PM daily...
Sending hugs