OK so here it goes. My rheumatologist has me taking carbamazpine to help me sleep and baclofen 3 times daily. I believe I need something more because the pain and headaches and muscle twitching are getting more frequent. He says this combination of baclofen, carbamazpine, and red pepper cream is proven to work. It may take 3 months or it may take years he says. I do not use the red pepper cream bc I cannot stand it.
I haven't been able to walk without a cane since July of 2014. (It's in my right foot/ankle). Recently, I have been trying to get around without it. For the most part, I can, but hurts like Hades. I can't stand for more then a minute, the cold air hurts me beyond belief,both my feet up to my calves get cold when I sit in a chair, my legs go numb when on the toilet when sitting up, back hurts when slouching on toilet.
I started having back problems about 5 years ago and it's just gotten worse. Here lately, it feels like my throat is closing up(in between my collar bone at the base of my neck). I just recently found out I am allergic to just about EVERYTHING and I mean EVERYTHING. My stomach has been burning so bad the PST few days I can't seem to do much of anything, except keep the toilet company. I am still trying to work, but just doing 5 mins of any kind of activity wears me out to the point of my co workers asking if I just ran a marathon.
My hips have been popping out of place for 3 years now, with just the slightest motion. I had shoulder surgery last year bc my right shoulder popped out of place and I tore my interior labram. I have noticed that I get real tired/exhausted feeling when the lights are too bright. It feels like I have a helmet pressing down on my head. I am not sure how long I can keep working, but my rheumatologist doesn't want me to do anything yet until I've been on this medicine longer. It's been 3 and half months.
I also take cymbalta at night time and singular with my carbamazpine. I take nuvigil bc I have narcolepsy as well. Have had Asthma since I was a young kid too.
I know this is a lot of information and it jumbled up, but I'd really like to talk with some of you about it.
And I know what ya men paw. This week, I barely have been able to do anything, other then just lay in bed and sleep. My wife is struggling real hard at home
Thanks all!!