Quote:
Originally Posted by MAT52
All the symptoms you have listed affect me - sorry I should have said this - blame insomnia that is exacerbated by Prednisolone for sure. Sweating I posted about a while ago well before the steroids but I guess it could be worsened by the Pred certainly. The sexual dysfunction comes in the form of loss of sensation in my pelvic floor area although this is far from total but definitely an issue. I have GORD confirmed recently by endoscope. Heart is okay by ECG but confirmed ectopic beats/ arrhythmia. BP consistently high over recent months from two hospital admissions but apparently was on the low side before that. Have to dash for son's travelling but just wanted to respond and say thanks as usual for your help. Mat
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Here's my symptom list for last rheumatology appointment in March - the order and severity have changed but all are still pertinent and at least this shows that I'm not finding a disease and matching the symptoms accordingly. Which can easily happen with multiple symptoms I think. The main changes have been that sweats are throughout the day and started before the Prednisolone but do worsen at higher doses. The facial numbness and tingling have worsened and the chest issues have gone but the feeling of fugue like fatigue and dramatic slowing down of breathing continues plus I notice now that I wake every few hours to pee and have a startled feeling of gasping for breath often.
List of main symptoms in order of severity March 2015
Jaw ache, nose and tooth neuralgia trouble eating/ chewing/ muffled hearing
Dizziness/ vertigo/ disorientation leading to three bad falls since
Christmas
Severe neuropathic pain in legs and arms prickly wet skin sensation
reaching up into groin area. Bone pain (like toothache) in feet, ankles, shins, knees, hands and wrists and elbows. Lightening bolt pain in knuckles and a wrists and jaw and ears.
Longstanding (2 years) loss of sense of taste and smell (100%)
Chest tightness / crushing pressure and pain breathlessness annoying cough, chest wall tenderness. Night waking with jerks and breathlessness.
Frequent nose bleeds and sores inside nostrils dry, crusting within nose and neuralgia around sinuses.
Loss of appetite and nausea - weight loss - intermittent intense upper abdominal discomfort/ pain - pain in bladder, womb and pelvic area.
Dry eyes
Increasingly widespread morning stiffness sometimes lasts all day
Poor dexterity and joint instability plus shooting pain and weakness in fingers, and wrists stiffening of joints especially in middle fingers
Issues with temperature regulation toes often whiten and feel like ice blocks while other parts burn. Widespread chills. Difficulty getting warm or cooling down.
Flu-like un-wellness/ slight fever and intense fatigue which worsens as the day progresses and after travel or activity
Backache and locking in lumbar region and backside. Pelvic floor numbness
Night sweats or else complete lack of sweating after exertion
.