Quote:
Originally Posted by en bloc
The details of your heart and BP issues are not the typical presentation for autonomic dysfunction, so I don't think that is your problem. In most cases the heart rate includes tachycardia and even bradycardia...but both are quite pronounced, not an every now & then thing. And the BP isn't usually high. With autonomic problems, it drops (considerably--like over 20 mm Hg systolic) upon standing as the body is unable to compensate for changes in position.
The GI problems associated with autonomic dysfunction are most often motility related...delayed gastric emptying.
I really have to agree with MrsD on this...that your gallbladder issue may be t the root of your current problems (not everything, but at least the recent exasperation). When are you getting this surgery? I think (and hope) you will notice a big improvement once this surgery is behind you.
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Oh I do hope you and Mrs D are right Enbloc! My gallbladder comes out two weeks tomorrow. I've done lots of research over the past few days and am really coming back to the idea that all my problems are rheumatic, billiary and allergic. So I'm agreeing with you both - but also fairly sure the gallbladder disease isn't causing my mouth to feel tight, gums sore with phantom pain or my feet and legs and knees and hands to be ablaze with pain tonight - all since moving back down to 10mg of Prednisone.
My rheumatologist emailed me to say he has had a helpful conversation with my neurologist now and will be speaking to his colleague, a Vasculitis expert, this week about my case. Hopefully this will lead to further treatment options for me - perhaps including Cellcept, Rituxan or IVIG even.
Thanks for reassuring me about the autonomic neuropathy - although I still think I probably do have a degree of this secondary to an unchecked inflammatory rheumatic disease process. But not as severely or progressively as people like yourself with primary inflammatory neuropathy have it perhaps.
Both of my parents died suddenly and prematurely from heart failure and both suffered from vascular dementia in the months leading up to their deaths so I do have some reason to be concerned by the arrhythmia and dizziness - especially as there is a significantly increased risk for those with RA of suffering cardiovascular diseases - probably because of uncontrolled inflammation. My dad had a huge silent heart attack at my age and had arrhythmia too. Hope this explains why I'm such a worrypot?
Got an appointment with the specialist dentist tomorrow and I'm hoping he will confirm or rule out TMJ as the cause of my mouth/ jaw/ nose issues and maybe make me a better mouth guard to prevent bruxism as the knock on effect of stress and widespread pain. Mat