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Old 06-22-2015, 05:06 PM
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EnglishDave EnglishDave is offline
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Join Date: Dec 2014
Location: Yorkshire, England
Posts: 2,098
10 yr Member
EnglishDave EnglishDave is offline
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EnglishDave's Avatar
 
Join Date: Dec 2014
Location: Yorkshire, England
Posts: 2,098
10 yr Member
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Dear Eva,

At the time of my original rx of Topiramate I was shattered by up to 8 Cluster Headache attacks every day, and had suffered for 10 years thinking they were TN related as I didn't know what they were. I was just so overwhelmed with relief when the attacks were cut by 75% I didn't quantify any other improvements, neuropathic or TN. I remember the decrease in intensity of TN was gradual.

When I increased my dose by a massive 25% in February I noticed neuropathic pain improvement immediately. Quantifying it, I would say it adds an extra 1-2 points on my pain reduction levels after taking all my meds. You know the multiple neuropathic and musculoskeletal issues I have, and this means I can be around a 4-5 with all my meds as opposed to a 5-6 or higher before the increase. This may not seem much, but to me it is the difference between living and barely functioning.

Of course, factor in Cluster or TN attacks and all numbers are meaningless, but I have both for my Sins.

Dave.
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"Thanks for this!" says:
eva5667faliure (06-24-2015)