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Old 06-22-2015, 06:00 PM
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icelander icelander is offline
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10 yr Member
icelander icelander is offline
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Join Date: Apr 2015
Posts: 240
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Quote:
Originally Posted by KnowNothingJon View Post
Icelander,

My attitude was poorer than poor today. This weather feels like it is affecting me- stormy for weeks- wind, thundershowers and humidity rising. Work is grating me. I acknowledge that much of my consternation is how amplified all the nonsense seems when my legs and arms are humming, muscles doing their thing, and so on.

I made it through, though. My son is passed out on the ottoman with what we hope is a 24 hour bug (Well I hope 4 hour) which has brought me back to the what is important, what isn't conversation.

I have always thrown myself into my job. My job still gets my production, but I've been listening to music, distracting myself and honing my focus. When I have client contact I am not plugged in, but all other times music is Pied Piping me through my day.

I also whole heartedly agree on the side effects of the usual suspects. Neurotin was not a match, Lyrica was until I was seeing diminishing returns plus a missed dose clued me in on how much mentally I was quid pro quoing for my "relief". Too steep.

A one month trial at half dose Cymbalta was uncomfortable, with no relief. The no relief portion is not surprising. The alertness was uncomfortable and I didn't feel an adjustment.

I am tired of teetering and tottering. Maybe I still will, but I need some relief.

When this first started slow on medicine was fine. There were plenty of changes I could try. I tried everything. Here I am, still progressing.

So it goes.
I feel ya. It's hard to have a good attitude when you are suffering and scared. I know this feeling soooooo well. I'll tell you something.
About a half year before the first signs of neuropathy, I bought a ukulele and decided to learn to play it. I'd always listened to tons of music but I wanted to play and sing. Well long story short it's been a huge emotional lifesaver for me during this illness. Fortunately most of the hand pain is on the backs of the hands and I can still play for over an hour at a time with no problems. Music is healing for me. So I say play on!

Last edited by icelander; 06-22-2015 at 06:20 PM.
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"Thanks for this!" says:
eva5667faliure (06-24-2015)