Quote:
Originally Posted by eva5667faliure
Dear fellow suffer
Most all you describe hands feet shins the constant
heartbeat of their own
My body riddled with pain all over
We are now going to try ANTISEIZURE Meds
For my PN as I cannot deal with the pain
And when you describe the mummified feeling
It come with excruciating pain
Look up doctor Kevin Tracey
At Feinstein Institute for Medical Research
In Manhasset, N.Y.
A neurosurgeon has come up
with a device that is placed on the vagus nerve
I want it but it won't be available for six mor years
I beleive in the study
It addresses rebooting our system
Inflammation being the culprit to many
of our ailments
It was a *itch just typing this
But that's a everyday gig for my body
Oh when you wrote
we are not in this because we are aging
My onset began after cervical ACDF and repeat PCDF
FAILED FAILED FAILED TERRIBLY
I have some hope when I watched this on the news
And just cried
For the total package of pain this body feels
I don't want to live anymore
I hear you
I feel the pains you describe
It shouldn't be depressing growing older
It peeked at fifty I am fifty four and it is getting
worse
Me
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Thanks Eva - I'm sorry you suffer so much from pain. I haven't been as troubled by the pain as you are because I've had physical pain all my life in one form or another. I am more got down by the fear that something awful might be happening and is progressing and going to affect my nervous system and organs that affects me most. So I try to keep calm and rely on my intellect rather than to let emotions get the better of me and this helps me a lot.
I do know about the Vagus nerve project which they are trialling in the Netherlands and also in the UK for Lupus sufferers I believe. It has already got a good track record with epilepsy sufferers and my GP and I have discussed it and are both excited about it's potential as a non drug, non invasive method of treating many diseases including RA. But meanwhile we each have to find ways to live with this stuff and my way is by finding out what is causing it rather than treating the symptoms. Tramadol and the occasional codeine (very constipating) get me by just about with the pain.
Good luck to you with the anti-seizure drugs. I've tried a few now but they didn't help me and made me ill.
Mat