Hi, JJ!

The type of CMS that causes a reduced amount of acetylcholine is pretty serious. Mestinon doesn't really help that kind of CMS.

You might have another type of CMS, where not enough gets to the muscles, just like in MG. There are over 100 genetic mutations!

There is a test to check on ACh levels. It would probably cost a lot over there.

B12 is one of the precursors for choline/acetylcholine, so make sure you get enough of that.

Doesn't it strike you as odd that we patients are often the ones doing the thinking and researching, while doctors simply check us off of their daily to-do list?

I really wish you could know for sure what is going on with your health. It can drive someone bonkers.

Annie