Annie thankyou so much for taking the time to explain things to me in terms that I understand.

I have breathing issues at night and have been supplied with a CPAP machine which I have had for some 4 years no, in fact just had it ramped up another bit. My SATS drop and I frequently wake throughout night. If I don't use it I vivid dream, acting them out in some instances. Had a Polysomnograpy on 3 occasions which confirmed REM sleep disorder. Wonder if it is the hypoxia that is causing those?

Because I walk like a drunk man I have been told I have Functional Neurological Disorder, worse when tired.

As I said in my first post have to go to hospital to have some further bloods done but those results will take a while to come back as they need to be sent to a specialist unit in England as far as I know.

Your description fits me perfectly. When asked I cite 2 problems (apart from never ending fatigue)

1. The FREIGHT TRAIN, is how I describe when I can no longer function and MUST sleep. No choice in the matter at all. Totally wiped out.

2. COLLAPSING DREAMS, while dremaing I cannot stand and only crawl. Usually in a scenario where my life is at risk, or grandchildren in danger and I havn't strength to help. Terrifying.

Again to everyone, thanks. Real eye opener as have put up with this for years.