I am 54 years old and was dx with this when I was 20 years old..from birth control pills....then they did several spinal taps and steroids. I have suffered with this again...after 2 brain surgeries and a bunch of I don't knows they again dx me with pseudotumor. I had a shunt put in jan of this year. Feb back at hospital...tubing had come undone..wrapped around spinal cord. Surgery was done and shunt placed on my other side...I had to have shunt in belly becuz my head is so messed up from surgery. oh what a time that was!!...take it day by day...some days are good some not......will be nice to talk to others with this disease.... thank you ...be blessed