Sorry for my bad english. It is the origin of the misunderstandings. Ok i will try to explain again all. My neurologist told me i have a mild neuropathy, mild, meaning not serious, not light sorry i thought light was the same as mild, so Melody, sorry i meant mild. Ok so he told me my neuropathy is not very seriours he said it is mainly sensory neuropathy because i can walk, do exercise and all my activities normally. The weakness i have is ocasional, like the day i went dancing. But i am afraid this weakness can reappear.

Kmeb: yes the doctor said it is autoimmune neuropathy, he took a blood test, and i read it today again i have not normal ganglioside gm1, this is elevated. In the test results it says the normal is 23 and i have 40. The doctor didn't tell me the type of neuropathy i have, i don't know. Te only thing i know is that i have some demyelinating one, because in the nerve conduction test said that in the sesults, it said "demyelinating polyneuropathy". And yes the cause is autoimmune. BUt i don't understand this well, why are the gangliosides? Can they go back to normal? Is it difficult that they go to normal?

I receveid the IVIG two weeks ago and i feel the same. No results yet. The same sensations, my legs are crazy, they move by themselves, i feel strange thigs inside, very difficukt to describe, if strecht my feet they are like in cramps. I feel very strange things. When i am in school it is difficult to pay attention. I think all the day about these sensations. Does this mean IVIg don't work for me?

Shiney Sue i am sorry you too had a health problem since very young, so i know you understand me. My fear is this is always going to be in my body. Can the immune system be repaired forever?

I am afraid. i have read people's neuropathies here. I am afraid i will become worse, that one day i won't walk, o run. I am afraid this neuropathy can get worse. The doctor tells me don't worry. he says it is not serious and it has a solution. MY neurologist is so nice and very sweet man. I feel he tells me this because he wants that i am happy, that i don't worry. Because i read about other people here with very long neuropathies, i think he is only being nice.

My mother is so worried too. She sees me cry and she cries too. She tells me to listen to my doctor, she believes my doctor is not lying, that it will go away, but he is not a magician. I don't know what to think. That is why i ask you if neuropathies. I want to know if ivig is effective, what do you think? When is it effective? I have two weeks and no effects yet, when will it work, if ti works?

Does neuropathy have a cure? I have read yes and i have read no. What is the truth? That is why I ask Mel, if it is realist to think this neuropathy will never go or if it is just being dramatic?

Barb, thank you for your information. No the doctor didn't say light chain neuropathy. I am sorry you have this. I hope you the scientists will find a cure for this. you sound like a very nice person, i can feel you are a caring person, what do you mean wit the chemical load?

Yorkie mom, thank your for clarifying everything. The only thing i have is the neuropathy. I don't have anything else. In my records the doctor only wrotte demyelinating neuropathy, autoiimune, but he didn't tell me the exact name. About the IVIG, i only took one, but the doctor tells me i am going to need more, maybe in three months. For the discomfort, the doctor gave me a medicine that is lyrica, but after the ivig he told me to stop it so i can feel the effects of ivig. Finally i am posting from Spain, from Valencia.

You all are very nice people here. Thank you. I really feel that people who spend some of their time helping others are admirable. Thank you all. I wish you the best, happiness, a lot of blessings, and good health.

Katrina