I finally saw a pain specialist today. He increased the neurontin to 3x daily. I was so knackered after taking the extra dose I slept all afternoon.
He said he thought pamidrondate infusions would be a good idea for me, but could not give them to me.
Then who will? My PCP won't, the rheumatologist won't and neither will the endocrinologist. Who do I call? There must be someone in the big hospital who could help me.
The pain specialist would not give me Savella, until I reach the optimum dose of neurontin, which means a two week wait.
The packet of naltrexone pills arrived today, but I can't start LDN therapy until I figure out the neurontin.
The pain is so terrible. I am not sure how much more of this I can take.
The only good thing is I found that scotch tape helped to heal the deep sores on my CRPS leg in a week. It was amazing.