Hi everybody. I am a new member and as the story goes with many like me it seems, after rounds and rounds of testing for my symptoms, I have recently been diagnosed with idiopathic s.f.n. I am a male in my late 30's and this came on pretty suddenly and aggressively (tingling burning numb, feet and hands, hot and cold spots throughout my body - is it raining? know that's just my skin- dizziness, migratory pain and headaches and fatigue that comes and goes) in April and its now June and I have pretty much zero improvement. The latest discovery that the two neurologists I go to have noticed that my copper, ceruloplasm and urine copper were all low and they have started me on copper replacement therapy for the last 2 weeks (btw, no change in symptoms, in fact have felt worse). The levels were only mildly low in the case of copper and ceruloplasm but very low on the 24 hr urine copper test which they believe means my body has been trying to replete the levels for some time. Has anyone with sfn here looked into this? The next step for me is a spinal tap to check the CSF and likely the iVIG route. Also be curious if anyone else has done this in idiopathic s.f.n. with any positive results?

Thank you all.