Quote:
Originally Posted by tlaymon
Thank you so much for your response, whiteaa.. How are you doing with walking and range of motion? It's crazy how you mentioned the ice.. Before I was diagnosed, the last few times I went to therapy, I noticed when they tried icing my knee, I couldn't stand the cold! I had to take it off, it was so sensitive.. I will definitely try swimming! I'm hoping for some answers at my next appt.. It's frustrating that he wants to take the "wait and see" approach.. I can't imagine going 6 more months like this.. I'm trying to stay positive.. I know things could always be worse.. I find it strange that he gave me very little info about RSD.. I pretty much had to research it myself.. Red flag, maybe??
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With a combination of no ice, prescription NSAIDs, KT tape, pool, and physical therapy, I am proud to say that I have regained my range of motion and ability to walk without a limp (I can even do stairs now!!!). There are still some things I can't do, like grocery shopping, kneeling of any kind, lunging or squatting, but it helps to focus on the gains instead.
Wait and see does not sound like a good plan to me. CRPS is aggressive and I think it is important for us to be aggressive back to avoid spread and worsening of symptoms. Part of the problem with doctors treating this condition I think is that it's so rare and every scientific study I have read on it pretty much concludes with "meh...idk maybe". I think you doing research is a great thing and you should keep doing that and advocating for yourself. As much as our culture treats them like it, doctors are not magical all-knowing wizards. If you disagree with the treatment, let them know and tell them what you think is appropriate. And your body is wise! Listen to it!