It's okay, most people are confused while being diagnosed! It's not fun at all, is it?

You're from Ireland, right? That means you are of "northern European" descent. We are more prone to autoimmune diseases, which explains your family history.

There IS a strong correlation between small cell lung cancer and Lambert-Eaton Myasthenic Syndrome!! The GOOD news is that it is often easily treated if caught early. I'm very sorry that you lost your sister to it.

Yes, some of these diseases can run in families.

Your doctor is incorrect about the results not being significant. Every sign of disease should be respected and followed to find the reason why someone is sick. And, in LEMS, that antibody is often at lower levels. That does not mean the disease state is "mild."

I think phrases such as "mild heart attack" are oxymorons.

When was the last time you had a chest x-ray or chest CT? In MG and LEMS, they usually do a chest CT to look for thymic cancer (MG) or small cell lung cancer (LEMS). There is no correlation between MG and lung cancer.

Again, try not to worry! Many people who have LEMS and have the cancer removed, do a lot better afterwards.

You need to tell your doctor this information about your family's history and about LEMS (as Celeste has given you). You need that blood test right away, and a chest CT if it's positive.

Try not to be too stressed out. Just get the help that you deserve! Geez, are doctors bored by their jobs? Is that why they don't care whether or not they help a patient?!!!


Annie

Also get your vitamin B12 and vitamin D levels checked. Those deficiencies are quite common! A B12 deficiency can also make you very tired. In addition, celiac disease is so common in Ireland that they've done specific studies just on people from Ireland!