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Old 06-26-2015, 09:28 PM
shug2003 shug2003 is offline
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Join Date: Jun 2015
Posts: 20
8 yr Member
shug2003 shug2003 is offline
Junior Member
 
Join Date: Jun 2015
Posts: 20
8 yr Member
Default Dr Thompson

Think twice about having this surgery. I was diagnosed by a neurologist with Suprascapular neuropathy and dorsal scapular neuropathy through an EMG. I was then sent to a Vascular surgeon for Thoracic Outlet Maneuvers(Doppler Ultrasound). Radial pulse obliterated with certain movements and I was diagnosed with neurogenic TOS and pec minor syndrome. Went to Dr Thompson after failed physical therapy for many years and he decided that TOS surgery would be the best choice. I have not been the same since. I can tolerate pain very well so I was ok the first few weeks post op. I even showed another patient how great my ROM was right after the surgery. The irritation after that period has been bad. Post op MRI shows scar tissue surrounding the Brachial Plexus nerve roots, trunks, and cords. I used to have pain in neck, scapula, upper arm. Now, 2 years after the surgery, I have a constant burning/tingling/irritation in the chest/neck/arm/front of shoulder as well as the pain before surgery in the scapula/neck/upper arm. I also now have a Deep Vein Thrombosis in my axillary vein - the same vein that goes from the brachial plexus through the pec minor where Dr Thompson operated! I am not trying to scare you--just letting you know what I have been through with Dr Thompson. Not to mention you really don't know who is operating on you- he could be training a resident (they have to learn somehow). He may tell you 75% success rate...that is not true. Doctors inflate this #... Check out*edit* -I would say more like a 25% success rate. 10-1 star reviews out of 5 and 2-5 stars out of 5. Dr. Thompson does work on major league pitchers - A few have had success. Chris Carpenter-St. Louis Cardinals had TOS surgery and initially came back to play for a short period. He was quickly forced to retire after recurrent issues.



Quote:
Originally Posted by melissat12 View Post
I was recently diagnosed with neurogenic TOS after a couple of years of unsuccessful PT and a trip to St. Louis to see Dr. Robert Thompson. The Dr. visit was thorough; however he recommended surgery as my best option for long-term relief.

Before I make my treatment decision, I want to get a second opinion. I am considering seeing Dr. Ying Lum at Johns Hopkins and wanted to see if anyone has had experience with Dr. Lum treating TOS. I would appreciate your comments on his approach, bedside manner, consultation experience, etc.

Also, if there are other Drs. (preferably in the southeast or east coast) that I should consider, I would appreciate your response.

Thank you!

Last edited by Jomar; 06-26-2015 at 09:46 PM. Reason: sorry no linking for new members..
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elap (06-27-2015)