NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/
http://www.ninds.nih.gov/disorders/t...rlov_cysts.htm

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Tarlov Cyst Disease Foundation
326 Norton Rd.
Knoxville, TN 37920
Tel: (865)577-4945
Fax: (865)577-4835
Email: retahoneyhiers@tarlovcystfoundation.org
Internet: http://www.tarlovcystfoundation.org

National Organization for Rare Diseases
National Organization for Rare
Disorders National Headquarters
55 Kenosia Avenue
Danbury, CT 06810
Phone: 203-744-0100
Fax: 203-798-2291
https://rarediseases.org/rare-diseases/tarlov-cysts/