Pat , thanks for the warm greetings and YES I am a chicken too!!!
I am not in for that coma stuff but I don't think I have been deteriorating to such an extent that I would warrant that kind a treatment .Then again I could just be in denial If it were the answer I would have to consider it, but I sincerely don't think I am there yet.

I don't have a control group for comparison so I think I am am progressing at a nice slow to moderate pace.I am in all 4 extremities now but not as severe as it could be .How is that for denial.I am good.

Froogga with all you have going on thank you for writing to me all together .You are truly an inspiration.My problems seem small in comparison .You are truly a survivor with the spirit of a warrior princess.Don't let them get you down .You are destined for greatness !!!!!!!!!
Now if there ever was a candidate for ketamine treatment it is you.I know you have been taking it orally and frankly I am amazed .I took 20 mg/day for 12 days and I was not on /of this earth .I guess as with any drug you can get used to it.
Are they offering anything of the coma variety in England ?
Can you get to Germany w/expenses covered with the British med system ?
Perhaps you can write to them in Germany and tell them of the severity of your case? Ask if they will do a freebee????.You never get a yes if you don't ask. If you need any help please write me a PM .i would be happy to draft a letter with/for you . You DESERVE it!!!!!!! If you can get better you deserve that chance!

Thanks Deb for your experience .I am sorry it didn't work. and Dimarie
I am so sorry about your daughter.this TOS is a monster. Thanks for the tip on Beth .I looked over on TOS but did not see a post from her of late

I have decided that I am going to go to the appointment .
I have waited all this time after all
I came to this decision as I have nothing to lose and EVERYTHING to gain.
I have not been getting any better .In fact as I mentioned I have only been getting worse .It may be slowly but it is worse all the same.
The least I can gain from this is another wasted doctors appointment .
I have been there before .I can get over that very quickly .
The most I can get out of it is feeling a whole lot better.

I like those odds.I don't want to look back and say what if I had gone
and ........... I could be thinking that for the rest of my life and that I can't get over very quickly at all.

I have a great person going with me who loves me unconditionally and supports my decision and what more could a girl want

will keep you all posted

GnP