Quote:
Originally Posted by kickersmom
Happy to have found this forum.... with my recent diagnosis of dystonia...question for others who have been diagnosed/treated for the same... it's been a week since my first botox injections and am still suffering.... if this treatment has not worked at this point, will it ever? after a year and a half of suffering neck pain, inability to rotate my head to the right, etc... I believe an accurate diagnosis has finally been made... but I am more than ready to have some relief! thanks for any input....
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Hi
I started to have leg and foot cramping about 4-5 months ago and my MDS DX Dystonia. I had DBS 1 year ago In May My MDS injected about 10 shots of botox ito my calves and feet. I felt no improvement. The next round is set for August 10. Hopefully this will help. I am told it can take several tries before they get it right. Having a lot of cramping pain (uncomfortable but tolerable)
I was prescribed Zanaflex. This has helped somewhat and I am still experimenting with the best times to take it 2mg 3x per day. It makes one drousy.
Question...Dystonia due to Parkinsons and levodopa responsive is this progressive? What I mean is will my head and hand twist and curl or is it unlikely? I was told that this type of dystonia is unlikely to progress. Can
anyone share their experiences.
Thank you all and have a happy 4th.
Damon