Originally Posted by damon4309

Hi
I started to have leg and foot cramping about 4-5 months ago and my MDS DX Dystonia. I had DBS 1 year ago In May My MDS injected about 10 shots of botox ito my calves and feet. I felt no improvement. The next round is set for August 10. Hopefully this will help. I am told it can take several tries before they get it right. Having a lot of cramping pain (uncomfortable but tolerable)
I was prescribed Zanaflex. This has helped somewhat and I am still experimenting with the best times to take it 2mg 3x per day. It makes one drousy.
Question...Dystonia due to Parkinsons and levodopa responsive is this progressive? What I mean is will my head and hand twist and curl or is it unlikely? I was told that this type of dystonia is unlikely to progress. Can
anyone share their experiences.
Thank you all and have a happy 4th.
Damon