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Junior Member
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Join Date: Jul 2015
Location: Chillin' in an Igloo in Alaska
Posts: 10
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Junior Member
Join Date: Jul 2015
Location: Chillin' in an Igloo in Alaska
Posts: 10
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Hope This Helps You Help Me
So I was just going over my little intro again & noticed there were a few things that I omitted that may be helpful for you peoples to give me suggestions on what to do. Anywho, here's a quick little list of what I believe are all of the important facts:
Bio
25yo Male; 270lb (I was 330lb back at the start of this year); 6'2"
Major Condition(s)
Glossopharyngeal Neuralgia, causing Chronic Pain in & around the Left Ear & Surgery Site Scar behind that ear. Have had an unsuccesful Micro-Vascular Decompression & semi-succesful surgery where they cut the nerve. Start Date: aprox. 2004-05
Secondary Condition(s)
Eustachian Tube Dysfunction, which is counteracted with Ear Tubes inserted every 6-12 months. Start Date: Birth
Deviated Septum, causing difficulty breathing with my nose & blocking my sinuses from draining properly. Start Date: aprox. 2002-03
Description of Pain
Left Ear - When I start experiencing pain, it usually starts with a sharp stabbing pain or something like being shocked by an electric fence. This can be followed up by more stabs and/or jolts, and/or a dull feeling that's almost like someone is balancing a bowling ball on my ear. In the evening & in bad attacks, the surgery scar behind my ear will feel like it's full of something dense, maybe like what's in a stress ball. Attacks generally last anywhere from a few minutes up to an hour or two in extreme cases.
Known Triggers
Physical exertion, especially lifting weights and running.
Moving my jaw for talking, yawning, and chewing.
Hiccups
Eating crunchy and chewy foods like chips, breads, fried chicken, pizza, etc. Certain spices also can cause pain, such as tabasco and similar spices.
Resting on my left side for more than a few minutes and wearing headphones or headsets.
Wind or fans blowing air across the left side of my head. This is a fairly new trigger (started March this year), and so far only happens later in the day when my ear pain is at its worst.
Loud noises can set my ear off, but again that's usuallywhen I'm already in pain.
How I Relieve Pain
Medication - including Morphine, Extended Release & Immediate Release.
Marijuana, used daily. This helps reduce intensity & frequency of the attacks.
Relaxation - I can't reduce pain during bad attacks, but if I catch a moderate one when it starts, I might be able to stop it.
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